Tuesday, March 12, 2013

Registry will be gone if we dont help

The International Skeletal Dysplasia Registry (ISDR*) may disappear because the funding from NIH will most likely be discontinued by the government.  

We will lose a valuable resource if we cannot help fund the registry at $250K/year till the government can support the registry. 

*http://isdr.csmc.edu/


No comments:

Post a Comment