tool for office hours

I found a very nice tool that allows setting up office hours. I will push for getting online office hours with leading doctors

http://ohours.org/rockhealth

Amer

Updated Resources page

Updated resources page with docs from Alpe in English.

resources direct link: https://drive.google.com/folderview?id=0B6gFgDDx1oM2QVd3RXJOQ0NHME0&usp=sharing. 

Growing Stronger at MAB

We are confirmed to attend the LPA MAB meeting in Washington DC on Sunday June 30 at 4pm EDT.

We will be presenting a donation from Growing Stronger to LPA's MAB and asking MAB to create a grant process for us. I will let update the blog to let you know the results after our meeting.

New fund raising page

New fund raising page.

We are excited to report we are moving to a new online fundraising tool that allows members to create their own fundraising page without us having to get involved. This is very exciting.

We are retiring our old page (still works but not preferred)
http://www.firstgiving.com/fundraiser/growingstronger/onlinedonations

and we are moving to:
https://mycharityofchoice.com/charity/profile/129#.UcmRafmG130

We hope to see more people raise funds for improving the quality of medical care for little people

2013 Grants Update

2013 Grants Update

We are pleased to announce that we completed the first full year of support of Dr. Horton's lab and Dr. Jyoti's work. Dr. Jyoti has received a grant based on her research and continues her important research without support from Growing Stronger. We are pleased to mention that we are now providing partial support to a Dr. Greg Lunstrum, research in Dr. Horton's lab. You can see progress from Dr. Horton's lab on their blog on the website (Learn -> Blog -> Dr. Jyoti's blog)

We have some changes to report with Dr. Wilcox's lab. Dr. Pavel has left Cedars in the beginning of April 2013. He is no longer supported by Growing Stronger. We are communicating with Dr. Pavel to evaluate how we can continue to support his important FGFR3 research.  We are working with Dr. Wilcox to finalize our first year support and in the process of evaluating our continued support.

updates April 25

We completed the 3rd episode of LP Doc Talk and uploaded to the website.

Dr. Horton's new lab  has published 2 blogs back in April - Great !!

Dr. Ain has confirmed he is available on April 23, 2pm PDT to host LP Doc talk. We have 14 questions for him to answer. 

Registry will be gone if we dont help

The International Skeletal Dysplasia Registry (ISDR*) may disappear because the funding from NIH will most likely be discontinued by the government.  

We will lose a valuable resource if we cannot help fund the registry at $250K/year till the government can support the registry. 

*http://isdr.csmc.edu/

Thanks form Shriners Hospital

Thanks to Shriners Hospital and Dr Horton who created the Achon Growth charts with his research. You can see his latest work at www.growingstronger.org blogs

Regards,

Amer Haider

cell: 408-234-0520

Sent from mobile device. Please pardon typos and brevity.

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Please visit the site www.growingstronger.org

Happy New Year