The International Skeletal Dysplasia Registry (ISDR*) may disappear because the funding from NIH will most likely be discontinued by the government.
We will lose a valuable resource if we cannot help fund the registry at $250K/year till the government can support the registry.
*http://isdr.csmc.edu/
We will lose a valuable resource if we cannot help fund the registry at $250K/year till the government can support the registry.
*http://isdr.csmc.edu/
