Below is an update I recently shared with a donor.
1. We found Sugen SU10270 within Pfizer and got the structure. Dr Wilcox and Dr Horton are testing the compound
2. We have published the description of the target molecule we are looking for. Please share the link below with your contacts.
3. We had a gala with presentations from Dr. Horton, Dr. Wilcox and friends who have dwarfism
See videos at: http://www.growingstronger.org/videos-and-presentations.html
4. We are a sponsor at the LPA National this year in Dallas. We will have a booth and meet and greet right after the "Research Panel" led by the LPA MAB (medical advisory board)
5. We are building a Parent advocate board so parents can sign-up to help fund raise and support each other
6. We are going to try and start 2 new online medical support programs
- Online radio talk show with a MAB expert
- Recruit MAB members to sign-up on http://www.healthtap.com
7. We have raised $180K/year. We are just $20K/year short of our goal of $200K/year for 3 years to support Dr. Horton and Dr. Wilcox
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