great comment

I wanted to share a comment from facebook in response to BioMarin's drug. I hope future generations do not have to endure what most little people have to experience today in terms of medical treatments

Amer

This is really interesting and complicated for me to process. I'm a mom to a young child with Achondroplasia as well as a woman with Achondroplasia who just went through two very complicated surgeries on my cervical spine. While goi

ng through the process I couldn't help but hope that my son will NEVER have to go through some of the procedures I did. But the unknown...is even scarier. Such a hard decision but could be a really good thing in the end. I wish there was a way to test it out without using our children in the trial runs...but I guess that's impossible? Thanks for sharing!

Time is flying. It has been over a month since I update the blog. I will write more about the LPA national convention. We had a great time and learned a lot. For now let me share an update from BioMarin. Nothing spectacular but good progress in the right direction.

http://seekingalpha.com/article/772391-biomarin-pharmaceutical-s-ceo-discusses-q2-2012-results-earnings-call-transcript?page=6

http://seekingalpha.com/article/772391-biomarin-pharmaceutical-s-ceo-discusses-q2-2012-results-earnings-call-transcript?page=7

Regards
Amer